IL ASAP SHARP Retreat - AIDS Foundation of Chicago

IL ASAP SHARP Retreat - AIDS Foundation of Chicago

IL ASAP Retreat March 21 & 22, 2012 Statehouse Inn Springfield, IL Agenda Wednesday, March 21 1:30pm: Lunch 2:00pm: Speakout, tell your story, about IL ASAP 3:00pm: Break 3:15pm: 2012 issues Federal, State

4:00pm: Tell your story, practice, getting around the Capitol 4:30pm: Adjourn 5:30pm: IL Health Matters Legislator Reception 7:30pm: Dinner Speakout! Tell your story IL ASAP An Overview

IL ASAP The mission of IL ASAP is to develop and support effective HIV policy and to nurture and support HIV advocacy leaders throughout Illinois. Why Create IL ASAP? Build advocacy leadership and contacts in each part of the state Coordinate advocacy efforts and bolster participation of

constituents outside of Chicago Create working relationships between different regions In short, form an all-star team to push for fair HIV/AIDS Policy! Why Create IL ASAP? Cont A mutually-beneficial relationship where AFC and the participants could communicate and learn more about the unique needs of each region of the state

A structure where AFC can provide technical assistance to other areas of the state on a more consistent basis A network where AFC can streamline large, grassroots advocacy efforts and target public officials anywhere in the state at the drop of a hat Expectations To advocate for the HIV/AIDS community of Illinois and IL ASAP concerns at the local, state and national levels, while supporting the mission statement of IL ASAP.

Attendance and participation at all required IL ASAP events, meetings and retreats. Participation on all IL ASAP mandated calls unless excused. Provide input, if applicable, in the selection of new IL ASAP members. Maintenance of a professional appearance and conduct at all public and political events and meetings. To notify the IL ASAP Co-chairs regarding any barriers or issues that may impede or prevent their ability to comply with the minimum expectations of IL ASAP members. Maintain confidentiality of all information per the AFC Confidentiality Agreement.

Maintain and support a positive environment in which all IL ASAP members may excel and grow, with more experienced members being mentors and examples to the newer members. Failure to Meet or Maintain Minimum Expectations The IL ASAP Co-chairs should be notified as soon as an issue is identified. The IL ASAP Co-chairs engage the member(s) in question In the event of repeated occurrences, the IL ASAP Co-chairs will engage the member(s) in question in a formal discussion, If we cannot reach a satisfactory resolution, the matter will be referred to AFC leadership Elected IL ASAP members who grossly or regularly fail to meet or maintain

the minimum expectations may be: Removal from a leadership or elected IL ASAP position. Possible dismissal from IL ASAP. Other actions deemed appropriate by AFC leadership. IL ASAP Confidentiality Statement AIDS Foundation of Chicago and IL Alliance for Sound AIDS Policy (IL ASAP) members are expected to maintain the strictest confidentiality regarding AFCs internal documents and personal information of other IL ASAP members. All AFC staff, IL ASAP members, interns, and volunteers are expressly prohibited from discussing client information (including but not limited to: HIV status or other medical information; personal information such as Social Security numbers, addresses, phone numbers and other

related data; other demographic information) with anyone whose job responsibilities do not require them to have access to such information. Staff and IL ASAP members shall also not disclose any other confidential information encountered during their work with AFC. Other confidential information may include, but is not limited to: AFC budgetary or contractual information, AFC donor information, and AFC proprietary information. When in doubt as to whether information being released is considered confidential, members should consult with an AFC staff member. Unauthorized release of client or other confidential information and/or failure to comply with the above policies may result in disciplinary action, up to and including termination of membership. By signing below, I verify that I will observe strict confidentiality of any confidential information I may obtain from any source. This notice is in compliance with the IL AIDS

Confidentiality Act and the Confidentiality Policies of the AIDS Foundation of Chicagos (AFCs) Personnel Policies and Procedures. The Online Action Bulletin Visit www.aidschicago.org/OAB Golden Rules of the OAB Take the OAB fact sheet to every meeting you attend Include a mention of the OAB in every presentation

you give Respond to the OAB when you get it in your mailbox Forward the OAB to your email networks Post the OAB on your Facebook If your friends and colleagues are slow to take action, bribe them candy works wonders Follow up with your

legislators, let them know you care about the issue and are paying attention Follow up with your friends and colleagues, let them know you care about the Policy Issues 2012 2012 Illinois General Assembly Legislative Update HIV/AIDS Issues

AIDS Foundation of Chicago March 21 , 2011 www.aidschicago.org 17 State budget and HIV Funding FY12 state HIV funding: $30.88 million Quinn proposed an 11% or $3.5 million cut. Final amount: $29.39 million (5% or $1.5 million cut) Budget consolidate four HIV funding accounts into one HIV & Corrections ($1.9 m),

Minority HIV/AIDS Prevention ($3.1 m), HIV/AIDS Hotline ($355,000), ADAP & other HIV programs ($25.4 m) FY13 state HIV funding: $25.4 million Quinn proposed an 14% or 4 million cut. HIV Lump sum amount again. ADAP flat funded from FY12 Entire $4 million funding cut would come out of communitybased HIV prevention, housing, corrections, minority healthpromotion and harm reduction programs resulting in a 50% cuts in these programs. FY 13 state HIV funding concerns Based on public health evidence of average HIV treatment costs and anticipated HIV infections that result from those

with undiagnosed HIV infection, we estimate that this reduction will increase costs to Illinois by $6.9 million in FY 13 because more people will need HIV treatment, and others will be re-incarcerated after re-entry programs are de-funded. In addition, the state will face an additional $40 million in lifetime health care costs for people newly infected with HIV because of the proposed funding cuts. 108 additional people will be newly infected with HIV 54 are likely to be African American, 17 Latino, and 37 white, based on the racial/ethnic distribution of HIV new cases in Illinois 38 infants will be born with preventable HIV-infection because 150 HIV-positive pregnant women won't get intensive case management 38 additional people will be newly infected because 6,467 fewer HIV tests and other services will be offered 32 people will be newly infected because 1,262 drug users wont get counseling & supplies 563 people with HIV will lose life-supporting services

563 low-income people with HIV will lose access to food, dental, primary physician care, medical case management, transportation, mental health and substance abuse treatment, likely worsening health outcomes and increasing health care costs 114 people with HIV will lose housing 114 highly vulnerable people with HIV will lose access to housing, resulting in homelessness and less adherence to medications. They will face worse health outcomes and higher health care costs. 255 people with HIV will be re-incarcerated at a cost of $5.6 million 255 people with HIV who left prison or jail will be re-incarcerated at a cost of $5.6 million per year (23% recidivism rate for participants vs. 51% general IDOC recidivism rate) because of funding cuts to a reentry program for people with HIV 150 people with HIV released from prison or jail will not receive case management, housing, primary medical care, and mental health services, making them less likely to access HIV treatment

Additional funding cuts Quinn also proposed spending cuts in several areas of concern for people with HIV: Addiction Treatment for Medicaid Populations (-$5 million or 10 percent cut) Mental Health Grants (-$58 million or 42 percent cut) Emergency and Transitional Housing (-$4.4 million or 52 percent cut)

Cuts to Medicaid The Illinois Medicaid program provides lifesaving health coverage to nearly 2.7 million low-income children, parents, people with disabilities, and seniors. However, the program faces a $2.7 billion deficit this year, and legislators are exploring a range of solutions. 21 On to Legislation

22 Improving Community & Prison Partner Notification (HB 4453-Smith/Lightford) Status: House on 3rd reading. HIV rates are 2-3 times higher among inmates than the general population. This bill would codify current practices and improve partner notification in correctional settings, requiring IDPH and IDOC to improve the system of partner notification.

Partner notification is voluntary and confidential. 23 Comprehensive Sex Education in Schools (HB 3027 Steans/Lilly) Status: Passed Senate, awaits House floor vote. If a public school in Illinois offers sex ed, it must be medically accurate, developmentally and age appropriate & must include the benefits of delaying or abstaining from sexual activity. Parents can opt out.

Schools would be required to use evidence-based curriculums approved by the state. Parents can review the curriculum. Funding is available from the feds to implement. 24 Red Ribbon Lottery (SB 2971 J. Collins/Yarbrough) Status: Senate on 3rd reading. Would extend the expiration date on the Quality

of Life (Red Ribbon Lottery until 2017. Proceeds from the lottery fund HIV/AIDS prevention and care services for populations disproportionately affected by HIV/AIDS. Fund raised $1.4 million for prevention and care last year. 25 Implementing effective anti-bullying measures (HB 5290 - Cassidy) Status: House amendment 3 on 2nd reading in

Education committee. In 2010, the General Assembly passed the School Prevention Act to define bullying and create a taskforce to look at ways to stop bullying. This bill implements recommendations of the of the task force. Adds physical appearance, socioeconomic status, academic status, pregnancy, parenting status and homelessness to protected classes from bullying. Defines policy on bullying to give schools guidance to comply with the law.

26 STAY TUNED! Visit www.aidschicago.org Register for AFC Lobby Day Wednesday, April 18th CONTACT: Ramon Gardenhire, [email protected] 312-334-0928. www.aidschicago.org

Telling Your Story Telling Your Story Keys to a Successful Legislative Visit Make it Personal Do Your Homework Offer Solutions Keep it Short Make Your Ask Follow Up!

The Power of Your Personal Story YOU know HIV/AIDS issues YOU are an expert on how HIV impacts your life As a person living with HIV As a person providing services to people living with HIV Your personal experiences provide perspective and

impact beyond statistics Lawmakers need the human story and face to understand importance of policies Make It Personal Introductions: Give your name Where you are from Relevant background information about yourself

Talk about the expertise you bring: As a person living with HIV Someone working in the field As a concerned community member Make It Personal Talk about: The issues and programs that matter to you and why (ADAP, health care reform implementation, case management, housing assistance, mental health, substance use counseling and

treatment, food and nutrition, prevention, etc.) How those programs help/ed you What would happen to you and others people living with HIV without these programs or if new programs were developed Do Your Homework Consult the fact sheets in your packets Think about how the policy asks relate to your life and experiences

Use the testimony worksheet to help organize your thoughts Offer Solutions This is not the place to complain, but to offer viable solutions to problems and challenges These are the policy and funding asks Talk about what is working Talk about where policies and programs can be improved

Keep It Short You may have only a few minutes Make sure you and your group are well organized so you can deliver your message and ask clearly and concisely. Dont use acronyms! Stay on your issue If conversation veers, bring it back! Make Your Ask Directly ask if you can count on the members support for:

Will you vote against a $4 million cut to HIV funding? Will you vote against a $2 billion cut to Medicaid? Wait and listen for a response Putting It All Together The Introduction: My name is Jonathon Smith. I am a lifelong resident of the district. I am 29 years old and have lived with HIV for five years. My whole family lives in the area.

I live alone and work for a small company that does not offer health insurance. Putting It All Together The Issue: I am here to talk to you about the Illinois Personal Responsibility Education Program, which would require Illinois schools to teach age-appropriate, medically-accurate sexual health education programs.

Putting It All Together The Personal Story: When I was younger, I went to a school that taught that I should abstain from sex until I got married. I didnt learn anything about how to use a condom or how HIV was transmitted. My parents didnt talk with me about sex either. I was forced to learn from TV and my friends. The sex ed program set the tone that sex was a shameful act that I shouldnt engage in. When I started to have sex, I felt I couldnt ask anyone about how to prevent HIV or STDs. Thats just not right.

Putting It All Together The Concern: Illinois youth are not getting the facts they need to make responsible decisions about their health and future. The Consequences: Providing medically-accurate and ageappropriate sexual health education programs must be one strategy to reduce HIV cases, unplanned pregnancies, and sexually transmitted diseases among youth.

Putting It All Together The Solution: The Illinois PREP Act requires schools that teach sex ed programs to provide medically-accurate and ageappropriate sex ed programs, using approved curriculums. Schools wont be required to offer sex ed; that remains optional. Federal funding is available to help implement the programs in schools. Any parent can remove their child from a sex ed class for any reason.

Putting It All Together The Ask Will you co-sponsor the Illinois PREP Act? If the Senator answers no: Will you vote yes on the bill? What if they say no? Make sure they give you a clear answer! Ask politely: will you support or not? If no, ask why. NOTE THEIR ANSWER AND REPORT IT BACK TO US. Dont arguethank them and walk away.

Questions? Welcome to the Circus Your quest The Illinois General Assembly

The Illinois General Assembly 59 Senate Districts: 2 House Districts for Each Senate District Senators serve 4year terms 118 House Members: Representatives The legislative process

Bill is introduced in first chamber Goes to second chamber. Heard in a committee has to pass by a majority

Goes to committee in the second chamber has to pass by a majority. Goes to the floor of the first chamber; has to pass by a majority.

Goes to the floor in the second chamber has to pass by a majority. Signed/vetoed by the Governor. Lobbying at the State Capital Illinois State Capital Buildingwhere

lawmakers debate and vote Stratton Building is where most state representatives have their offices All state senators have their office in the Capitol Finding your new BFF your Senator Finding your senators: Go with other advocates with the same legislators. Your group leader can help you out. See if they are in their offices;

ask their assistants where they are (be super-nice!) If needed, go to the committee room and wait patiently (good place to rest!) As they walk out, ask if they have a minute. FINDING YOUR STATE REPS Go with other advocates with the same legislators. Your group leader can help you.

See if they are in their offices; ask their assistants where they are (be supernice!) If needed, go to the committee room and wait patiently (good place to rest!) As they walk out, ask if they have a minute. Who do I visit? Your own Illinois Senator and Representative If possible, go with others from your district or a nearby district

Check in with us to see if you can get a special assignment! Lobbying at the rail House & Senate Sessions at 12 pm Most visits happen at the rail, the public area just outside the House and Senate chambers To request a lawmaker

visit, pass your card to the doorkeepers and wait patiently Advocates Lobbying At the Rail You may only have 30 seconds FACT SHEETS REINFORCE YOUR MESSAGE GIVE THEM TO YOUR LEGISLATORS!

The Stratton Building Office Visit Also helpful to know AFC staff, IL ASAP members and others will be in red shirts. Ask them for directions! Ask anyone for

directions. Take the TUNNEL between Stratton and the Capitol. Otherwise, youll go through security again. What if I cant find my legislator? Its a zoo? It didnt seem like my

lawmaker was listening? I didnt get a chance to say everything? OTHER TIPS If conducting meetings with other advocates, determine who will cover which issues. Practice delivering them together.

Be PATIENT, polite and courteous. Dont use acronyms! Take note of any questions or requests for additional information. OTHER TIPS Hand over the fact sheet at end of meeting

Be gracious, attentive and organized Stay on your issue dont stray Say I dont know if you dont know the answer to a question Thank them for support (if appropriate) and time Follow up!

FOLLOW UP Thank the Rep. or Senator for their time Tell them you will follow up with them soon Send them any additional information they requested Keep track of their support or opposition and call or write to say thank you or to keep pushing them Agenda

Thursday, March 22 8:30am: Breakfast 9:00am-11:00am: Lobbying at the Capitol/Stratton Building 11:15-12:30: Feedback, planning for Lobby Days 12:30pm: Lunch 1:00pm: IL ASAP work plan 2:00pm: Adjourn Feedback

Feedback $54 B being allocated this year, there is money Harris & Delgado Need to target approps Bug Sarah about budget issues Hernandez and Soto needs to get on board Advocates need pictures of reps Facebooks on tables at hotel Lobby Days Planning

Experiences from Previous Lobby Days and Suggestions for this Year? Follow up with phone call, home visit Training advocates how to do in district work Have fact sheets in advance to send to networks about issues Send flyer to LGBT groups IL ASAP members to HIV groups Chris, Scott and Tony/Sharon, Chad TPAN Send out IDPH 12 budget so ASAPers can show agencies Chad and Donte and Scott maybe speaking at rally

Make signs the night before noisemakers other than Eric L. Quick research on legislators you will be seeing IL ASAP Role at Lobby Days Leading small groups on trip to Capitol and guiding them to meet their legislators Helping to run home base operations in the rotunda Leading Groups to Capitol

Bus by Senators last name Lead groups to Senators offices and rail Give assistance to those needing help finding Rep.s office Other Roles IL ASAP Could Play? Lunch IL ASAP 2012 Work Plan

IL ASAP Work Plan What issue will affect all parts of Illinois in 2012? Stigma community level intervention not much legislative Client involvement/access to services State and fed budget cuts Implementing HCR Educating community about benefits Elections Youth issues Housing

Building the Action Plan Issue identification

What are the concrete and specific problems we most need to address? What concrete solutions can solve the problem(s)? Health care reform unclear and confusing How it benefits HIV/AIDS community Incorporating issues like budget cuts, client involvement tying things together Clear understanding of which parts of HCR may be overturned Building the Action Plan

Core Goal(s) & Objectives What is our core goal(s)? What are 2-4 clear objectives that IL ASAP can use to help determine the success of its plan?

Educate clients on impact of HCR how many? Educate IL ASAP on HCR Documents/ppts/materials/toolkit Humanizing the message/reframing issue Educate state legislators on importance of HCR on HIV Building the Action Plan

Targets 3. 4. 5. 6. Who are the decision makers and what influences their decisions?

Clients Legislators Community Selves Building the Action Plan Core Constituencies

What people/groups are most affected? Who among them will be willing to participate in advocating for a solution?

Low-income Medicaid ADAP Undocumented LGBTQ Sex workers CBOs Homeless pop Domestic violence

Building the Action Plan Allies/Supporters 4. 5. 6. 7. 8.

In addition to the core constituents, who will be supportive and helpful on the organizing effort? How will you get their support? AFC Legislators ASOs Current HCR movement CBHC Medical community Building the Action Plan

Opposition Who stands on the other side of this issue and will attempt to block/thwart or work against you? How do you deal with them?

GOP Budget hawks Insurance / brokers Self-insured orgs? Small businesses Some religious communities

Building the Action Plan Tactics/Activities What tactics and activities will you use to accomplish your goal(s)? What relationships does IL ASAPs base, allies, supporters, etc. have with the targets?

Presentations Town halls Media campaign Speaker meetings Blogs Youtube Social network Lobbying Existing acitivities (CBHC) Legislative visits Webinars Elections GOTV, know candidates stances on HCR

Building the Action Plan Organizational Structure How will you be organized to accomplish your goal? Who makes what level of decision? How will you communicate efficiently within the

structure? Working groups possibly broken down by main objectives? Building the Action Plan Key Messages

What are 2-4 key, clear, and publicly accessible messages for your campaign? HCR is transform the fight against HIV/AIDS Long-term money saver and life saver Something about RW and Medicaid

Building the Action Plan Budget What is the minimum amount of money you need to conduct a campaign? How will you secure the necessary financial resources?

Building the Action Plan Community Building Activities What are a few activities to build community and familiarity among the organizers? Building the Action Plan

Evaluation How will you evaluate your campaign? How will you know if you were successful? Besides reaching our major goals, what other measurable outcomes are desirable? Public Foundations

& Non-Profits Identifying and Recruiting Must AbideAdvocates by Same Restrictions Who should IL ASAP actively outreach to support the work? Organizations Individuals Public

Foundations & Non-Profits Creating Opportunities for Must Abide by Same Restrictions Grassroots Advocates What are specific actions IL ASAP could take to help advocates gain greater understanding about

HIV/AIDS policy issues? Presentations/ teach in Lobby days Webinars Social media HCR bootcamp Text message campaign Direct action Survey community what they know, need to know Public Foundations

& Non-Profits Creating Opportunities for Must Abide by Same Restrictions Grassroots Advocates What are specific actions IL ASAP could take to help advocates enhance existing/learn new advocacy skills?

Creating Opportunities for Public Foundations & Non-Profits Grassroots Advocates Must Abide by Same Restrictions

What are specific actions IL ASAP could take to build client involvement? Regional care reps Support groups Action coalitions BTAN Peer to peer PFLAG GSAs? CORE HB TPAN The Caucus

COH iL prevention planning group CABS Planning bodies CBOs Rev Green FRA, prison work CAN TV Public Foundations & Non-Profits Creating

Opportunities for Must Abide by Same Restrictions Grassroots Advocates What simple, but concrete actions could IL ASAP develop for advocates to support the statewide policy agenda? Public Foundations & Non-Profits

Next Steps Must Abide by Same Restrictions For ASAP Figure out organizational structure for work plan to meet objectives IL ASAP members should make a list of orgs/people to reach out to List of activities they could be involved in For Pete Plan HCR education for IL ASAP

Lucy to send out hotline list Send this ppt to all and get input from absent members Next Steps Next Steps AFC figure out how to target approps and others lobb days and in district visit

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