Hospice: A Guide for Professionals 2016 www.medicarerights.org Medicare

Hospice: A Guide for Professionals 2016 www.medicarerights.org Medicare

Hospice: A Guide for Professionals 2016 www.medicarerights.org Medicare Rights Center The Medicare Rights Center is a national, nonprofit consumer service organization that works to ensure access to affordable health care for older adults and people with disabilities through: Counseling and advocacy Educational programs Public policy initiatives

2016 Medicare Rights Center Page 2 National Council on Aging This toolkit for State Health Insurance Assistance Programs (SHIPs), Area Agencies on Aging (AAAs), and Aging and Disability Resource Centers (ADRCs) was made possible by grant funding from the National Council on Aging 2016 Medicare Rights Center

Page 3 This training will cover Medicare basics Eligibility Parts Hospice basics Eligibility Coverage Costs 2016 Medicare Rights Center Page 4

Medicare basics 2016 Medicare Rights Center Page 5 What is Medicare? Health insurance for people age 65+ and people who have received Social Security disability benefits for 24 months People of all income levels are eligible Run by the federal government but can be provided by private insurance companies that contract with the federal government

2016 Medicare Rights Center Page 6 Medicare eligibility: Age Who is eligible for Medicare? Those 65+ years who: Collect or qualify to collect Social Security or Railroad Retirement benefits, or Are a current U.S. resident, and either A U.S. citizen OR A permanent U.S. resident having lived in the U.S. for 5 continuous years before applying for Medicare NOTE: The 5 years may be reduced if the individual

qualifies for premium-free Medicare Part A 2016 Medicare Rights Center Page 7 Medicare eligibility: Disability Who is eligible for Medicare? Those under 65 years who: Have been receiving Social Security Disability Insurance (SSDI) for more than 24 months OR Have been diagnosed with Amyotrophic Lateral Sclerosis (ALS) and have qualified for SSDI

OR Have been diagnosed with End-Stage Renal Disease (ESRD) AND Are getting dialysis treatments or have had a kidney transplant; Have applied for Medicare benefits; and Have been deemed eligible for SSDI, railroad retirement benefits, or are otherwise considered to be fully insured by Social Security 2016 Medicare Rights Center Page 8 Parts of Medicare Medicare benefits are administered through three parts

Part A Hospital/Inpatient benefits Part B Doctor/Outpatient benefits Part D Prescription drug benefit Added 2006 What happened to Part C? Private health plans (e.g., HMO, PPO) Way to get Parts A, B, and usually D through one private plan Known as Medicare Advantage Not a separate benefit May cover services not covered by Parts A and B (i.e. Original Medicare), such as vision and dental care 2016 Medicare Rights Center

Page 9 Hospice basics 2016 Medicare Rights Center Page 10 What is hospice care? Program of end-of-life pain management and comfort care Hospice goal is to help beneficiaries live comfortably, not to cure an illness Hospice focuses on care that treats the whole person, or holistic care

2016 Medicare Rights Center Page 11 Hospice care After electing hospice, an individuals care will be managed by a specially trained team of professionals and caregivers Team addresses beneficiarys physical, emotional, social, and spiritual needs Beneficiaries receive care in their home A doctor and nurse will be available on call 24 hours/day, seven days/week

2016 Medicare Rights Center Page 12 Hospice eligibility To elect hospice, an individual must must: Have Part A Have a hospice doctor certify that they have a terminal illness* Sign a statement electing to have Medicare pay for palliative care (pain management) Receive care from a Medicare-certified hospice agency If a beneficiary elects hospice, Medicare will no

longer pay for curative care related to their terminal illness Can still receive curative treatment for unrelated conditions** 2016 Medicare Rights Center Page 13 Hospice and Medicare Advantage Hospice is always covered by Original Medicare After electing hospice, those with Medicare Advantage (MA) Plans will be covered by Original Medicare for all care related to their terminal illness MA Plan will continue to cover care unrelated to the terminal illness or its conditions

Beneficiaries must continue to follow their plans rules for any care covered by their MA Plan This includes seeing in-network providers and/or paying plan copays MA Plan will continue to cover any additional benefits it provides, such as vision or dental 2016 Medicare Rights Center Page 14 The benefit period Medicare will cover hospice care for two 90-day benefit periods, or six months

Afterwards, an individual is allowed an unlimited amount of 60-day (two-month) benefit periods At the start of each new benefit period, a hospice doctor must recertify that beneficiary has a life expectancy of six months or less 2016 Medicare Rights Center Page 15 Hospice coverage and costs 2016 Medicare Rights Center

Page 16 What hospice covers Depending on the terminal illness and related conditions, hospice care can include any of the following: Doctor services Nursing care Durable medical equipment (DME) Medical supplies (like bandages and catheters) Prescription drugs Hospice aide and homemaker services Physical, occupational, and/or speech therapy Social work services Dietary counseling Grief and loss counseling (for the beneficiary and immediate family

members) Short-term inpatient care (for pain and symptom management) Short-term respite care Other services recommended by hospice team 2016 Medicare Rights Center Page 17 Respite care Allows beneficiarys caregiver to rest while beneficiary receives care in a Medicareapproved facility Can be a hospice inpatient facility, hospital, or nursing home Beneficiary can stay up to five days each time they get respite care*

Respite care can only be provided on an occasional basis Care received at facility must be non-curative comfort care 2016 Medicare Rights Center Page 18 Hospice aides and homemaker services Hospice aides may provide personal care services, for example: Changing the bed Light cleaning and laundering Generally maintaining a safe and sanitary environment

for beneficiary Hospice aides are overseen by registered nurse on the beneficiarys hospice team 2016 Medicare Rights Center Page 19 Short-term inpatient stays Hospice can include inpatient care at a hospital, SNF, or hospice inpatient facility Patients medical condition must call for a short-term stay for pain control or acute or chronic symptom management

Only covered if care cannot feasibly be provided in another setting All care received must comply with plan of care 2016 Medicare Rights Center Page 20 Counseling services Provided to beneficiary and family members, or others caring for the beneficiary at home Counseling can: Train family members/caregivers to provide care Help beneficiary and family members come to terms with the beneficiarys terminal condition

Under certain conditions, dietary counseling is also available 2016 Medicare Rights Center Page 21 Bereavement services Hospice covers bereavement counseling for beneficiary and their immediate family Emotional, psychosocial, and spiritual support and services Available after hospice has been elected Family members may continue to receive counseling

up to a year after the beneficiary passes 2016 Medicare Rights Center Page 22 Continuous home care (CHC) In crisis situation, if beneficiarys caregiver is unwilling or unable to continue providing care, hospice agency may decide to provide CHC A hospice agency can only provide CHC to a beneficiary if their caregiver was providing skilled care that maintained palliation* Hospice will provide a minimum of eight hours of

nursing each 24-hour day so that skilled care continues to be provided 2016 Medicare Rights Center Page 23 Hospice costs After electing hospice, beneficiary must continue paying their deductible and monthly premiums* Hospice benefit should cover all care related to terminal illness Remember: if beneficiary has an MA Plan, Original Medicare still pays for any hospice-related care

Additional costs include: $5 copay for pain and symptom management prescription drugs 5% of the cost for inpatient respite care Copays and coinsurances for any care received unrelated to terminal illness or its conditions 2016 Medicare Rights Center Page 24 Medigap coverage under hospice Some beneficiaries may have purchased a supplemental insurance policy, or Medigap Medigaps cover cost-sharing for Original Medicare beneficiaries

Beneficiary must pay monthly premium for Medigap Medigap will cover previously discussed costs for prescription drugs and respite care Medigap will also continue to cover costs for care unrelated to terminal illness and its conditions 2016 Medicare Rights Center Page 25 What hospice doesnt cover Once an individual has elected hospice, Medicare will no longer cover: Curative care for the terminal illness or any related

conditions Prescription drugs (except for pain and symptom management) Care for the terminal illness and related conditions from providers other than the hospice medical team* Hospital outpatient care, inpatient care, or ambulance transportation, unless its unrelated to the terminal illness or arranged by the hospice team Medicare does not cover room and board 2016 Medicare Rights Center Page 26 Beneficiary hospice rights

2016 Medicare Rights Center Page 27 Rights after electing hospice Getting hospice care does not change a beneficiarys rights, including: Right to choose Medicare doctors and related providers Right to file complaints Right to appeal Beneficiaries also have the right to: End hospice care at any time Appeal their hospice doctors decision to end their hospice

Change their hospice agency 2016 Medicare Rights Center Page 28 Ending hospice Beneficiaries have the right to stop hospice at any time Can elect to return to curative treatment Beneficiaries should speak with their doctor if interested in stopping Beneficiary will have to sign a form that includes the date their hospice care will end

Once hospice care has ended, beneficiary will receive their Medicare benefits however they did before hospice, either through Original Medicare or a Medicare Advantage Plan 2016 Medicare Rights Center Page 29 Appeal rights At the start of each new benefit period, a doctor must recertify that beneficiary has a life expectancy of six months or less If doctor declares beneficiary to be no longer eligible for hospice, beneficiary can request review of their case

Doctor is required to give beneficiary a notice explaining their right to an expedited appeal, including instructions for how to appeal 2016 Medicare Rights Center Page 30 Changing hospice agencies Beneficiaries have right to change their hospice agency once each benefit period To change agencies, beneficiary must sign a statement naming the hospice agency they plan to receive care from, their previous hospice agency, and the effective date of the change

The statement should be filed at both hospice agencies 2016 Medicare Rights Center Page 31 Selecting an attending physician Beneficiaries can choose their regular doctor or nurse practitioner to be their attending physician This allows beneficiary to continue seeing their own doctor after electing hospice care, if they wish This doctor will be included in in the hospice team and supervise care Beneficiaries can select a new attending physician by

filing a signed statement with their hospice agency 2016 Medicare Rights Center Page 32 For more information and help Local State Health Insurance Assistance Program (SHIP) www.shiptacenter.org www.eldercare.gov Social Security Administration 800-772-1213 www.ssa.gov

Medicare 800-MEDICARE (633-4227) www.medicare.gov Medicare Rights Center 800-333-4114 www.medicareinteractive.org National Council on Aging www.ncoa.org www.centerforbenefits.org www.mymedicarematters.org www.benefitscheckup.org 2016 Medicare Rights Center

Page 33 Medicare Interactive Medicare Interactive www.medicareinteractive.org Web-based compendium developed by Medicare Rights for use as a look-up guide and counseling tool to help people with Medicare Easy to navigate Clear, simple language Answers to Medicare questions and questions about related topics, for example: How do I choose between a Medicare private health plan (HMO, PPO or PFFS) and Original Medicare?

2 million annual visits and growing 2016 Medicare Rights Center Page 34 Medicare Interactive Pro (MI Pro) Web-based curriculum that empowers professionals to better help clients, patients, employees, retirees, and others navigate Medicare Four levels with four to five courses each, organized by knowledge level Quizzes and downloadable course materials Builds on 25 years of Medicare Rights Center

counseling experience For details, visit www.medicareinteractive.org/learning-center/courses or contact Jay Johnson at 212-204-6234 or [email protected] 2016 Medicare Rights Center Page 35 E-newsletter Released every two weeks Clear answers to frequently asked Medicare questions Links to explore topics more deeply Additional resources and health tips

Co-branding available Sign up at www.medicarerights.org/about-mrc/newsletter-signup.p hp 2016 Medicare Rights Center Page 36

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